12/2/2016 2 Comments
Why are you a Baldie?
I was diagnosed with Alopecia Areata at the age of 4. It turned from losing hair in patches, into Alopecia Universalis, meaning total body hair loss.
What challenges have you faced as a bald woman?
Growing up, living a "normal" life was out of the question. I was constantly judged, mistreated and made fun of, by people of all ages. Kids were cruel and adults were very ignorant and not sympathetic to my problem. Rumors were constantly spread about me that I had cancer, when I never had the disease in the first place (thank GOD). Alopecia is simply just a fancy word for "hair loss". Being affected by the autoimmune system. I had dealt with the ignorance of our society for 21 years. Going to school was difficult, being called names and barely making friends. Getting stared at in public and shut down by the opposite sex, all because I did not fit their description of beauty. It was almost impossible. Once my mother explained to everyone what was going on, things became easier for me. My hair fell out for the final time at age 9; in which inspired my mother to make my very first wig. On occasions when my hair grew back, it was in a pixie-style or longer. During the absent period, my mother made hats to cover up my head. Even though she couldn't stop the emotional pain and tears, she got tired of seeing me suffer from this silent and unexpected condition.
How did you overcome the insecurities of being bald?
I went through a very painful breakup with my ex in 2014, which led me on a journey of self-discovery. He was the first person that I had shared my deepest insecurity with and tried to help him understand, but things did not work out in the end. After every negative thing that was experienced up until then, God began to take me under His wing and opened a door that I never imagined walking through. In 2015, I began competing in pageants. Initially to earn money so I could finish my education, but then something else happened. I discovered ME, in the process. My life story turned into a NATIONAL platform, in which I am a Legislative Liaison for the National Alopecia Areata Foundation! God turned my pain into PURPOSE! I overcame my biggest fear at the NAAF Conference in Washington D.C., this summer. Revealing my baldness for the VERY FIRST TIME. I placed 2nd runner up at my pageant (2015), as well as competing at the State level. Breaking stereotypes for Alopecians alike, everywhere! I have never felt more FREE, confident and sexy!
What words of encouragement would you share with someone who isn't confident with their baldness?
Outside of Christ, love begins with YOU. If you cannot love and accept yourself FIRST, then how do you expect someone else to love you? Learn how to be comfortable in your own skin. My mother taught me this from very young. Reveal yourself when YOU are ready. Do not conform to society's standards of what beauty is. CHANGE that definition. There is so much powerful in owning what you have and once you begin to accept it, then no one can steal your confidence. I am NOT my hair
My Bald is...
Why are you BALD? Alopecia
How has being BALD impacted your life? It took me a while to reveal my baldness. My hair was one of best features. I would always get compliments on how pretty my hair was. After I couldn't hide the bald spots any longer, I shaved the few hairs I had off. After that hair started coming out everywhere. I wore wigs, scarves, and slouch hats for the longest. I had decided to reveal my head soon, but on Memorial Day I attended a picnic. It was so hot I had to take off the slouch hat I was wearing. I was with friends and family, so I felt comfortable. Someone took pictures and posted them on FB. Well, it was out there then. So I changed my profile pic and the rest is history. This is still new to me but I love the freedom of not having to find something to cover my head to coordinate with my clothes. I'm free and loving it. My lipstick and earrings are now my hair.
What's the worst thing that has happened or has been said to you as a BALD woman?
Before I revealed my head to the world. I would uncover it around friends and family. My little niece told me that I would never get a husband cause I was bald. So far she is correct...LOL! But I love my new look and I do get lots of compliments and most are from men.
What words of encouragement would you share with someone going BALD?
As a woman, I know it's a hard pill to swallow. But I figured God created me this way for a reason. I love the uniqueness of being bald. I stand out and am noticed. Sometimes when I'm out, I forget I'm bald. It's a journey you must travel on your own, but you are not alone. Embrace your bald beauty. I did and love it!
Greetings Everyone, I'd like to introduce to you Ms Haley. She will be receiving a Beanie for Alopecia Awareness Month.
Her story shared by her mother Holly. My daughter is Haley, she is 10 years old. When she was 3 1/2 we found out she had AA, while we were on our family vacation we noticed that she was losing large amounts of hair at one time. In a 4 week time period she lost all of her hair, at that time she was 4 years old. As she has grown up being bald, most of the kids became use to her not having hair, but the boys in school still like to call her names, and kids at the pool and in stores will still point and say things to her. She has a hard time with this, and at time will come home in tears but as she has gotten older she also has started to tell people why she doesn't have hair, and is helping to teach people about Alopecia.
Greetings Everyone, we'd like to introduce to you Kallie Jo McCain, she has universal Alopecia and she will be receiving a Baldie Beanie.
Story told by her mother Dawn. She has been dealing with this since she was 5 years old. Her parents have treated up until her 12th year when she had complete hair loss due to some other health issues that caused us to have to stop treating it! She had complete hair loss during her 7th grade year! It was a terribly sad year for her, she had days she missed from school due to people teasing her! She final came out to her school and told her story that's she's bald, the school was very judgmental but some of the kids were very supportive and because of just those few good kids our daughter currently does not wear a wig to school! She has bad days and good days but is fighting through like a tough girl!