Yes I am bald (the tiny bit of hair I do have just on top is like baby hair & breaks off), my hair just doesn't grow. It's known as "beaded hair". It's only my head that's affected, I have eyebrows & eyelashes, as it's not related to alopecia. I have small goosebump like bumps on the back of head. I used to have these on my knees as a kid but they seem to have gone away. On a plus side I don't have much hair on my arms or legs! :)
I grew up in Canberra, which even though it is the capital of Australia, it's like a big country town. My beautiful parents were always protective of me and concerned as I got older, as I was teased every day throughout school. I've worn wigs (when out in public) ever since I was about 10 years old. I've never felt confident enough to not wear a wig outside, and have suffered severe mental health issues mostly from the trauma I've experienced by being made to feel like an alien. I don't "hide" the fact that I wear a wig to anyone, if anyone asks I straight up tell them. At home I'm much more comfortable wearing a beanie or hoodie, particularly now it's turned cold. I've also experienced a lot of trauma unrelated to the monilethrix but I did read that interestingly, stress & trauma can make it worse. I also know from other family members that hormones & different hair phases play a part.
I do hope to one day (and I feel it's slowly coming together :) ) feel confident enough to truly be myself on the outside. I remind myself of the positives, that I'm unique, that I won't have to worry about going grey or getting expensive haircuts! I've learned to enjoy wearing wigs over the years too. It is empowering to see women just show their bald side though, and prove that society can be so ridiculous with their so called beauty standards.
It's through people like yourself, and the internet, that is making me do much more comfortable and at ease with my condition. I would love to help educate people on my own experience and knowledge on the disorder. It really is just such a rare condition, that it's difficult to find any info about it anywhere. Also every doctor I've ever met has never heard of it and has had to look it up! I did manage to find one IG user in the US who has monilethrix but I'm yet to hear back from her.